Tuesday, December 28

Surgery #2

My how things change in an instant. Instead of preparing to transfer out of ICU we are preparing for surgery #2.

Long story short: Cultures from fluid taken out of B's head from today is still growing live bacteria, meaning the antibiotic isn't working as well as they'd thought. It is some how not reaching the brain fluid quickly.

Solution: put another reservoir in B's head on the other side (surgery #2) and flush antibiotic directly into one reservoir and out the other. Direct antibiotic to the brain fluid will kill the bacteria faster and more effectively. This is the theory at least. The neurosurgeon has only done a double reservoir a handful of times and with good results.

So we are preparing for B to go back to the operating room tomorrow afternoon (29th). This is a hard decision for us but we need to do what's best for B. He is still intubated (breathing tube) from the first surgery in preps for #2. Hopefully we can get it out quickly after his second operation.

Praying for a safe surgery and a successful antibiotic treatment!




When B was sick in the NICU I never would post pictures, they were scary to me. Breathing tubes, IV's, it's a lot to look at. But this is our reality. No parent should ever have to see there child like this, it's heartbreaking. I'm not sure how we do it. Some days I charge through and some days (like today) I'm a mess. One step at a time I guess.

"Hope begins in the dark, the stubborn hope that if you just show up and try to do the right thing, the dawn will come. You wait and watch and work; you don't give up" -Anne Lamott


42 comments:

Nicole said...

I have been praying for you guys. I can't imagine what you're going through, but I pray little B gets better soon. Take care of yourself and know that people are thinking about you!

Heather said...

I'm so sorry you are going through this. As a mommy, looking at those pics breaks my heart, and he's not even mine. I don't know how you guys do it, either. I give you major credit.

Sending all of my positive thoughts and prayers to your little Brayden.

Rachel and John said...

Oh Heather, I'm so sorry. I'll be praying extra hard for B, and hopefully soon this will be behind you.

Cole said...

I'm praying hard for you and Brayden!

Caroline said...

I am praying for you guys. B is so strong. Thank you for keeping us posted.

Kelly said...

Oh my dear! I wish so much that you guys did not have to go through any of this! I am so happy that you have Derek there to hold you when you can't stand any more - please let me know if there is anything that I can do! I will even bring you a coffee and just sit with you if you want - anything at all!! I will pray for you and for your little buddy.

Marie said...

Praying for your family. Your little B is such a fighter and so strong!

Tasha said...

I am praying for your family and baby B! I cannot imagine what you all are going through but stay strong!

Sarah said...

Praying for your sweet little man.

Candice Pair said...

Praying for y'all and baby B. I haven't been on blogger in a while and it broke my heart to see this post.

StylishSuburban said...

Praying for your little boy. He is strong and a fighter.

Tiff said...

Heather- my thoughts and prayers are with yall. I just know Brayden feels your amazing strength right now and he is using to get better.

Pleas please let me know if I can do anything! :)

Kristi said...

Little B is an amazing boy! I am praying for him- praying lots.

Syndal said...

I am so sorry you are going through this. This is truly the most difficult times you will ever face as a parent and we are all thinking of you and praying for your family. You have a gorgeous and obviously strong little baby there and he knows mommy and daddy are there loving him and supporting him. Even when your heart is breaking, remember the pieces will come together again soon!

Ashley said...

Your strength is amazing! Your little man is a fighter and I'm praying that he will be home soon!

Mrs. Bear said...

Sending prayers and good thoughts your way!

Becky said...

I'm so sorry you have to deal with this. Sending prayers your way!

Lynsey and Brian said...

Praying for you guys! I am so sorry you are having to go through this. B is a strong fighter!

Sarah said...

Oh Heather I am so sorry you guys are going through this! B sure has shown he is a fighter! Praying that he has another successful surgery and praying for you also! Also praying for his Dr's!
xoxo
Sarah

Lindsey said...

i can't imagine. you are so strong. thanks for sharing your story. i will be praying for B.

Aly @ Analyze This said...

My heart hurts when I read your posts about B's struggles! Know that I am thinking of y'all!! Much love coming your way H, D and B! XO

m&msmommy said...

Continuing to pray for B, you and your husband!

Katie said...

praying for you guys daily!!

Lucky in Love said...

Oh sweetie! I'm so sorry to hear this! Praying for the doctors and their wisdom to make your little boy strong again!

aapuzzanchera said...

keeping you in my thoughts. fingers are crossed!! Take care!

Jenna said...

Lots of prayers going out to you and your family today! I pray so hard that B pulls through all of this and that you and your husband can be worry free! You are such a strong Momma!

Emily and Derek Williams plus one said...

Praying for your sweet little boy.

Sherrie said...

Praying for you all at this time.

Lindsay said...

aww, praying for your sweet family!

PinkSass said...

Thinking of you, always.

Chris and Danielle Lenz said...

You and your family are always in our prayers. Stay strong!

Momma Drees said...

This is one of the hardest things to look at; hoping your child never has to endure anything like this. Thoughts and prayers for the 3 of you!

Lindsey said...

Praying for your sweet baby boy. I can't even imagine what you are going through.

Megan said...

Praying for B today as well as many other's are. I am hoping that this surgery is 100% successfull and that he has a speedy recovery. Also praying for strength for you and your Husband

Gina said...

Oh my gosh, this is so much for B and you guys. My prayers are with all of you.

Nicole said...

Been thinking of your family and little B. I read this in my devotional this morning and immediately thought of it when I read what you wrote about how difficult it is to see B in the NICU:
"He [God] Himself has said, I will not in any way fail you nor give you up nor leave you without support. [I will] not,[I will] not, [I will] not in any degree leave you helpless nor forsake nor let [you] down (relax My hold on you)! Assuredly not!" Hebrews 13:5

Hang in there. B sounds like such a tough guy. You've got a lot of people praying for you!

Nicole said...

Been thinking of your family and little B. I read this in my devotional this morning and immediately thought of it when I read what you wrote about how difficult it is to see B in the NICU:
"He [God] Himself has said, I will not in any way fail you nor give you up nor leave you without support. [I will] not,[I will] not, [I will] not in any degree leave you helpless nor forsake nor let [you] down (relax My hold on you)! Assuredly not!" Hebrews 13:5

Hang in there. B sounds like such a tough guy. You've got a lot of people praying for you!

Devon said...

i am so sorry you are having to go through this right now...know i am thinking of you...

and even those B's pictures are hard to look at, they are your (and his) reality and one day you will look back and remember these moments and marvel at how far your little boy has come.

hang in there mama....

MLD said...

Keeping the three of you in my thoughts!!

MJ said...

You are in my thoughts...hoping for a successful surgery and speedy recovery to get that precious baby boy back into your arms...

Swissy said...

Aww, it's breaking my heart seeing this little sweetheart being ill. I really hope he'll get better soon. It's amazing how you guys got the strength to go through it all. You must be scared and exhausted. Hang in there...

appreciate each day! said...

praying for you daily! lots of love.