B has been home for a week and a half and we are starting to get into a routine, finally! I heard the first two weeks are the hardest and I will attest to that completely. It has been tough and at the same time wonderful.
So now that our routine is starting to establish it's going to be shaken up again when D goes back to work next week!! I may have a mommy freak out!! But just like we've done for 3 months, we re-adjust, grow, and learn!
B is doing well. He's eating well and sleeping pretty good. He has been getting fussy and having gas, I think maybe the fortifier from the hospital?? We meet with our new pediatrician on Thursday, long story, but we switched and meet our new one this week. I want to consult with her about his gas. I don't want to give him gas drops because of all the other Rx he is on.
He is still having trouble regulating his temp (from the bleeds). Last week he was on the colder side and this week he is on the hotter side. He had a slight temperature last night and we called the NICU (since they know B the best) and they gave us instructions. His temp went down but we are still monitoring. And let me tell you how awesome the 'recal' temps are to get! They are the most accurate and require great skill to master. Luckily B doesn't mind it too much.
So off to more of this....
And this...
Tuesday, November 30
Saturday, November 27
3 months old!
Little man is 3 months old! He is the size of a 'typical' newborn which goes along with his corrected age. He gets bigger every day.
Today I had some mommy time with my mom at the mall and B had some daddy time. Turns out they had a photo shoot! So the hubs gets all the credit for the pics. It was nice to get out for a few hours, we have been hibernating.
Life with him is true bliss...but man are we tired!!!
Today I had some mommy time with my mom at the mall and B had some daddy time. Turns out they had a photo shoot! So the hubs gets all the credit for the pics. It was nice to get out for a few hours, we have been hibernating.
Life with him is true bliss...but man are we tired!!!
Thursday, November 25
Thankful
Happy Thanksgiving!
This year I have SO much to be thankful for....
My wonderful husband.
Without him and his support I could not have gotten through all the struggles with Brayden.
Without him and his support I could not have gotten through all the struggles with Brayden.
My family (and In Laws)
And most importantly my little man!
I am beyond thankful that he is home safe with us, my miracle.
I am beyond thankful that he is home safe with us, my miracle.
And I wanted to say a special thank you to our friends, family, and the blog community. Your support, comments, emails, and prayers over the last 3 months have been so amazing for D and I. B has touched many lives and I'm so glad I was(am) able to share his story. Thank you for reading and caring.
Wednesday, November 24
DIY Photos
Lots of hats+good camera+lack of sleep+going stir crazy+want to order my xmas cards=Do it yourself photo shoot!
A preview...I saved the best for our birth announcement and x mas cards but these are also adorable!
Yes, I put my tree before Thanksgiving. It actually has been up for over a week!!
And thanks to my P's wefinally have some pictures of the three of us. We only got 2 good ones in the NICU.
A preview...I saved the best for our birth announcement and x mas cards but these are also adorable!
Yes, I put my tree before Thanksgiving. It actually has been up for over a week!!
And thanks to my P's we
Monday, November 22
Sleep? What's that?
We are on little sleep and are exhausted but we could not be happier to be home with B. It's been scary with no monitors, nurses, or the 'safety' of the NICU but we are slowly getting used to a 'wireless' baby.
He has been such a good baby. Eat-sleep-poop-fuss a little-sleep on mom-sleep on dad. We are so happy to be with with him and learning our new routine, no sleep and all!
Today is our first outing, B has an eye exam with his Loyola Dr's. And Tues he will meet his pediatrician for the first time.
And we may or may not have already taken 8,000 pictures.
He has been such a good baby. Eat-sleep-poop-fuss a little-sleep on mom-sleep on dad. We are so happy to be with with him and learning our new routine, no sleep and all!
Today is our first outing, B has an eye exam with his Loyola Dr's. And Tues he will meet his pediatrician for the first time.
And we may or may not have already taken 8,000 pictures.
Saturday, November 20
Friday, November 19
Homecoming Day!!
My baby is coming home today!! I am feeling such a rush of emotions. We have dreamed of this day since he was born, 12 weeks ago. Deep down I knew this day would come and a small part of me thought he would live in the NICU forever. 12 weeks is a long time and we had a road full of ups and downs.
I have read all my 'homecoming' chapters in my preemie books and I find comfort in having moms and stories to relate to. It is definitely scary bringing him home when he has been 'safe' in the hospital for so long. I know we will find our new routine and I will learn and grow as a mom.
We are leaving with an apnea monitor to track his heart rate and respiratory rate. He had a history of apnea before he got sick, he actually stopped breathing. So this will be a just in case for our peace of mind. He is also going home with 6 oral medications. (2 seizure meds, one for jaundice, vitamin, iron, and an anti-acid). Nurse mom? Once I get into a feeding routine the meds will be become much easier, I hope!
We checked out of the Ronald McDonald House yesterday and are heading to the hospital shortly. I am stopping, at a different hospital, on the way down to meet my dear friend Amy's new baby, Wyatt. We are doing our monitor/ medication training this afternoon and then waiting until our favorite nurse, Sarah, comes on at 7pm to discharge us.
The house is ready, the going home outfit is washed, the deep freezer is FULL of milk, everything is set.....he will finally be home after 84 long days!
I have read all my 'homecoming' chapters in my preemie books and I find comfort in having moms and stories to relate to. It is definitely scary bringing him home when he has been 'safe' in the hospital for so long. I know we will find our new routine and I will learn and grow as a mom.
We are leaving with an apnea monitor to track his heart rate and respiratory rate. He had a history of apnea before he got sick, he actually stopped breathing. So this will be a just in case for our peace of mind. He is also going home with 6 oral medications. (2 seizure meds, one for jaundice, vitamin, iron, and an anti-acid). Nurse mom? Once I get into a feeding routine the meds will be become much easier, I hope!
We checked out of the Ronald McDonald House yesterday and are heading to the hospital shortly. I am stopping, at a different hospital, on the way down to meet my dear friend Amy's new baby, Wyatt. We are doing our monitor/ medication training this afternoon and then waiting until our favorite nurse, Sarah, comes on at 7pm to discharge us.
The house is ready, the going home outfit is washed, the deep freezer is FULL of milk, everything is set.....he will finally be home after 84 long days!
BORN:
Aug 27
2 lbs 14oz
15 3/4"
WELCOMED HOME:
Nov 19
6lbs 13oz
19 1/2"
(and full of personality!)
Thursday, November 18
Due Date (and NEWS)
Today is my original due date. I have said or thought about this date hundreds of times. Even though today is not B's birthday it is an important date in his life. His corrected age date is today. Even though he is 12 weeks old, size wise and developmentally he is 1 day old.
I have thought about how I would feel today over the last 12 weeks. It's bittersweet in a way. When I had B early, even though I had a new baby, I experienced a great sense of loss. I lost 3 months of pregnancy and him growing inside me. There is always that 'what if' that comes to mind. What if I was still pregnant? What if he would have been born full term? With the wondering I will still never know, I have excepted this. I do not know what a third trimester is like, or a the happy moment when you hold your newborn for the first time right after birth. I didn't hold B till he was 3 days old. Even though it's been a struggle of ups and downs the last 12 weeks I was 'suppose' to be pregnant, I have gotten to spend this time with my son. It's almost like my special extra time I got with him.
So would I trade it and go back if I could? No. I have never been more scared or sad in my life while B was in NICU. There were days I wasn't sure if he would live to see tomorrow. But I have also never been happier in my life. The moments of joy he brings me are irreplaceable, I would never give those moments up.
My pregnancy did not end or go the way I wanted it to but I can look back at all the special moments I had when he was in my belly. It was 'our time' together. It will always be special to me.
I have thought about how I would feel today over the last 12 weeks. It's bittersweet in a way. When I had B early, even though I had a new baby, I experienced a great sense of loss. I lost 3 months of pregnancy and him growing inside me. There is always that 'what if' that comes to mind. What if I was still pregnant? What if he would have been born full term? With the wondering I will still never know, I have excepted this. I do not know what a third trimester is like, or a the happy moment when you hold your newborn for the first time right after birth. I didn't hold B till he was 3 days old. Even though it's been a struggle of ups and downs the last 12 weeks I was 'suppose' to be pregnant, I have gotten to spend this time with my son. It's almost like my special extra time I got with him.
So would I trade it and go back if I could? No. I have never been more scared or sad in my life while B was in NICU. There were days I wasn't sure if he would live to see tomorrow. But I have also never been happier in my life. The moments of joy he brings me are irreplaceable, I would never give those moments up.
My pregnancy did not end or go the way I wanted it to but I can look back at all the special moments I had when he was in my belly. It was 'our time' together. It will always be special to me.
| 28 weeks-the day before B was born |
"My precious little baby
I have loved you from the start
You are a tiny miracle
Laying closely to my heart
Each day I feel your presence
Each day your heart beats softly
As only I could know
So I'll keep this in a special place
And remember each year through
Of this very special time in my life
The moment I carried you"
~Anonymous
And the NEWS....
B is going home!! Friday is the day! (Saturday at the latest) We are waiting for the medical company to drop off our apnea monitor he will be going home with. We are beyond excited, and scared!! Just in time for Thanksgiving, so much to be thankful for! More to come...
You are a tiny miracle
Laying closely to my heart
Each day I feel your presence
Each day your heart beats softly
As only I could know
So I'll keep this in a special place
And remember each year through
Of this very special time in my life
The moment I carried you"
~Anonymous
And the NEWS....
B is going home!! Friday is the day! (Saturday at the latest) We are waiting for the medical company to drop off our apnea monitor he will be going home with. We are beyond excited, and scared!! Just in time for Thanksgiving, so much to be thankful for! More to come...
Wednesday, November 17
Prematurity Awareness Day

Today is Prematurity Awareness Day. I, of course, wanted to dedicate my post today to it.
When I became pregnant I never imagined that my little one would be born early. I thought I would have the fairy tale pregnancy and birth I had envisioned. With a text book pregnancy I didn't have any reason to think otherwise. My world came crashing down and flipped upside down on Aug 27th when I learned I was in pre-term labor, 12 weeks early!! It was devastating and scary.
(you can read Braydens birth story here)
I was thrown into this world of doctors, monitors, illness, complications, and sadness surrounding my son in the NICU. It is a scary place and far from 'the ideal' I had wanted.
Over time we learned to cope and except our journey and in the midst of chaos, we bonded with this little miracle. Being a preemie does not end when you leave the hospital. We have a long road of doctors, follow ups, and possible complications from being born early.
I am so grateful for my son and the medical staff at Loyola. With them and the work the March of Dimes does my son survived a possible fatal infection, twice! Not to mention just being early and less than 3lbs. He is truly my miracle baby.
I am(was) surrounded by premature and sick babies all day while in the NICU. It's amazing how common it is, 1 in 8 babies. I have seen true miracles and happy stories and I have also seen death and deep sadness. This is a cause I intend to keep fighting for. I would not take our journey back, it brought me Brayden. But I do want to make sure it doesn't happen to anyone else. I look forward to a day when all babies are born full term and healthy!
Keep fighting for the ones who can't.
B-4 days old in my hands“We can only appreciate the miracle of a sunrise if we have waited in the darkness” |
Monday, November 15
Hungry little man
B loves him some food! His formula has been thicken to just the right consistency and we brought in our own bottles from home (Born Free) and success. He is taking about 2.5-3oz per feeding, he wakes up about every 4 hours.
He is a pretty chill baby but when he's hungry (or has a poopy diaper) he gets fussy. He wakes up, fusses a bit, then goes to town trying to eat his hands. It is the cutest thing. If the blanket or my fingers gets too close to his mouth, he will try and eat those too! As soon as he has eaten he is out, like a zombie!!
We got a cute video of the hand munching. FYI-the funny sound is his hic-ups.
Tomorrow is B's MRI in the morning. We hope to have results on Tuesday. Fingers crossed and prayers all goes well!
He is a pretty chill baby but when he's hungry (or has a poopy diaper) he gets fussy. He wakes up, fusses a bit, then goes to town trying to eat his hands. It is the cutest thing. If the blanket or my fingers gets too close to his mouth, he will try and eat those too! As soon as he has eaten he is out, like a zombie!!
We got a cute video of the hand munching. FYI-the funny sound is his hic-ups.
Tomorrow is B's MRI in the morning. We hope to have results on Tuesday. Fingers crossed and prayers all goes well!
Friday, November 12
Passed his test!
We have been anxiously dreading awaiting B's hearing test. A side effect of meningitis is hearing loss and since B had it twice we were worried that his hearing would suffer from it. My great-grandparents had meningitis as children and were both deaf as a result.
Well, B had his test and passed with flying colors!! His hearing is perfectly fine!! Another miracle! We are so happy!
Current weight: 6 lb 8 oz
Well, B had his test and passed with flying colors!! His hearing is perfectly fine!! Another miracle! We are so happy!
Current weight: 6 lb 8 oz
Feeding update:
B has been eating great but has been having bradycardia (heart rate drops) during feedings. The speech therapist did a video swallow study with him, an xray of him eating to see what's going on. It showed he was not aspirating any liquid into his lungs so they decided to try a thickener in the milk. It's a gel called Simply Thick that will change the consistency of the milk to make it slightly thicker. Today is day 1 on it so hopefully no more bradycardia.
Tuesday, November 9
Shutterfly Holiday Cards
Last year we did our holiday cards with Shutterfly and this year I plan to do the same thing. They have offered 50 free cards to bloggers this year....great deal!!
I like there designs more and more each year and there website is so user friendly. I have already picked our card for this year, it will be a surprise, but here were some of the runner ups. For being so budget friendly these cards all look expensive!
So bloggers head here to check out there 50 free card offer. Sign up, write up a blog post, and there yours! It's such a great deal!!
I am so excited for Christmas this year...I think I may put the tree up before Thanksgiving!!
I like there designs more and more each year and there website is so user friendly. I have already picked our card for this year, it will be a surprise, but here were some of the runner ups. For being so budget friendly these cards all look expensive!
![]() |
| Found here |
![]() |
| Found here |
![]() |
| Found here |
So bloggers head here to check out there 50 free card offer. Sign up, write up a blog post, and there yours! It's such a great deal!!
I am so excited for Christmas this year...I think I may put the tree up before Thanksgiving!!
Monday, November 8
Big changes!
B had an eventful weekend. He was taken off his oxygen and his feeding tube was taken out!! Basically...he has no tape on his cute little face anymore!
He is doing great with no oxygen. They decided to try him on ad-lib (let the baby wake up when he's hungry to bottle feed). So far so good!! He wakes up about every 4 hours and takes about 2 ounces by bottle each feeding. We add a fortifier to it for some extra calories. Over the last few days he has gained weight one day and lost some the next so they are just watching 'the trend' over the week to make sure he is on track.
B has an MRI scheduled in one week (Mon 15th) and a repeat spinal tap in the next few days. Once these results are reviewed they will determine if they want him to stay on antibiotic longer and they will then nail down a homecoming date!! Looks like little man will be home for Thanksgiving! Something to be SO thankful for! (fingers crossed)
He is doing great with no oxygen. They decided to try him on ad-lib (let the baby wake up when he's hungry to bottle feed). So far so good!! He wakes up about every 4 hours and takes about 2 ounces by bottle each feeding. We add a fortifier to it for some extra calories. Over the last few days he has gained weight one day and lost some the next so they are just watching 'the trend' over the week to make sure he is on track.
| No tape!! Sweet little (clean) face! |
| This face cracks me up! It's right after all the tape came off. He has that 'What the hell is going on' look. LOL! |
B has an MRI scheduled in one week (Mon 15th) and a repeat spinal tap in the next few days. Once these results are reviewed they will determine if they want him to stay on antibiotic longer and they will then nail down a homecoming date!! Looks like little man will be home for Thanksgiving! Something to be SO thankful for! (fingers crossed)
Saturday, November 6
Brayden's Birth Story
Written: November 2010
*****
When you reflect back on the day your child was born it should stir happy and excited emotions of warmly welcome your little one. For me, the day I met my son was not filled with these typical emotions, amidst the excitement of meeting him there was a lot of fear underneath it all. The day was terrifying but we can't go back and change it, it is forever our story.
The week of August 23rd....
The week was starting out normal per usual. I was excited that my third trimester was in the works and we were in the home stretch to meet our little boy. I was looking forward to Fall and welcoming the much needed cooler weather. This was an exciting week for me, I had a three day work week and then we were off to Michigan for our babymoon trip.
I was one of those women that experienced Braxton Hicks contractions from about 23 weeks on. A completely normal part of pregnancy. This week I noticed that they were slightly stronger than normal. They were not coming at any regular intervals so I brushed them off. I noticed I was getting more back pain and I would ask Derek to rub my lower back each night before bed. I thought that the third trimester had really kicked in and I was starting my 'uncomfortable' stage.
I had my 7 month check up with my midwife that Tuesday and everything checked out perfect. I had passed my glucose test, my iron levels were perfect, and my weight gain was right on track. I was the gold star mom to be!! I asked her about my stronger BH contractions and she assured me that as long as they weren't regular or I was having more than 4 an hour that it was nothing to be alarmed about. The back pain is common in late pregnancy and neither of us were too concerned. I left the appointment with a big smile and happy about my healthy progress!
Thursday had finally come and we were all set to drive to Michigan for our special trip. I wasn't looking forward to 4 hours in the car but I couldn't wait to 'get away' for the weekend. The weather was shaping up to be a perfect weekend. We arrived in MI around 4 and quickly settled into our room and headed to the town to shop before dinner. We found the cutest little shops; baby stores, a dog boutique, and a gelato store. After an early dinner we both got a large gelato and then headed back to the hotel to watch the sunset on the patio. It was so beautiful over the lake.


I headed to bed early (per usual). I remember asking D to rub my back, the bed was pretty hard and I knew I would be uncomfortable all night. I woke up a few times to pee and because the bed was so hard, making the back pain worse. I was dreading sleeping on this bed for another 2 nights but I thought that the lake view was worth the crappy bed!
Friday, August 27th.....Braydens Birth Day!
We both woke up to the sunrise and the rays pouring into the room. Our natural alarm clock! I sat up in bed to wake up more then I rolled over to baby pose, for the yoga buffs, on the bed to relieve my back pain some. When I finally got out of bed my usual routine began...bathroom was always first. I remember looking down and there was a small amount of blood. My mind was immediately filled with panic. I knew this wasn't a good sign. I showed D, maybe hoping that I had imagined it and asked him what to do. I already knew that calling our midwife was game plan 1 but some part of me just needed some reassurance and help!
Derek called Debbie to explain and she instructed us to wait while she called her practicing physician. (Midwives in IL must have a physician they partner with in case there patients should need to go to a hospital, the physician would be there Dr). I had scheduled my mandatory meet up with him for the following month just to get the all clear for paper records. Little did I know I would be meeting him in a few hours.
While I was waiting for the call back I told D to pack and that I was sure we were going to head home. The 30 minute wait seemed like 10 hours. The phone finally rang and she presented options. I didn't want options, I needed to be told what to do!!! We could either go to a hospital in Michigan to get checked out or risk a drive home, if something were wrong the drive could present problems like not knowing where a hospital was. I put her on hold, checked the bleeding which had stopped, and told her I was heading back. Something in my head just told me to leave and so we did. Within 5 minutes we were off.
My midwife made an appointment for me at her physicians office, 3 hours away, and said she would meet us there to get checked out!
I was so scared the whole ride. My mind was going over every scenario of what this could mean. D and I were pretty silent the whole ride. I asked him to stop once so I could check the bleeding and it hadn't come back. This gave me a small amount of relief. I was having 1-2 BH an hour, I timed them out of fear, and nothing was regular or stronger so this brought me some relief. I tried to remain as calm and relaxed as possible while in the car. We didn't tell anyone we were headed back, we didn't want to scare anyone if it was nothing so we decided to wait on the phone calls. My parents has just arrived in Europe for there anniversary trip and I was definitely feeling scared having my mom was so far away.
We finally arrived at the Dr's office and they asked me to have a seat and wait for the Dr. I was furious!! They seriously want me to wait?? I asked to use the bathroom before my exam and my fear again returned, more bleeding. I was silently freaking out inside. When I returned to the waiting room Debbie had arrived and D could see the terror on my face. I explained to Debbie all the events in more detail and asked what this could be?? As soon as I asked my question I wanted to take it back, I didn't really want to hear what this meant, secretly I knew it was bad and I didn't want anyone to say it out loud.
We all got called in and I met Dr Gomez who examined me along with Debbie. He decided on a vaginal exam first to see what was going on. It was only about 30 seconds and I knew by the look on his face it wasn't good. He said quietly and slightly panicked to Debbie 'I can feel the membrane sack, she is 100%, and 5'. I knew what this meant, I had been a good student in my birth classes. Membrane sack: amniotic sack, 100%: cervix was 100% open, 5: I was 5cm dilated! He looked at me and said what I already knew, 'you are in pre-term labor'. Debbie walked over to grab my hand and I went numb. I looked at D for reassurance and he looked just as scared. I was asked to carefully lay down for an u/s. I only saw B on the screen for a second. The Dr confirmed 'he was in position' and turned the screen off. Debbie and the Dr left to 'talk' and I immediately started crying. I was so confused. How the hell was I 5cm dilated? How the hell was I in labor and didn't know it?
After quickly returning the Dr said I need to be admitted to the hospital immediately and I would need to wait for a wheel chair to be escorted over. Luckily the OB office was connected to Gottlieb Hospital so I didn't need to go far. They placed me in the waiting room, again, and said the escort would be there soon. Seriously more waiting....I'm in labor here!!!! I was mad and confused. I said to D, 'it's time to call our families'.
I waited for an eternity it seemed before my wheel chair and Labor and Delivery nurse arrived. She did her best to calm me and tell me what was going to happen once I got to my room, I don't remember a word she said except that 'your husband will meet you in the room after he checks you in'. What? No, your not leaving me alone! Apparently I had no choice in the matter because next thing I knew D was gone, I was asked to put a gown on, 3 nurses were giving me IV's, I got a huge needle in the thigh, 'steroids for babies lung' they said, and a fetal monitor on my belly. And then just as quick everyone was gone! The room was still.
It was noon.
Debbie arrived about 3 minutes later to sit with me and shortly after D came back in. Debbie explained to me that I was being given Magnesium to try and postpone the labor and the steroid was to help Braydens lungs for the outside world. My head was spinning, I wasn't really sure what was going on. I felt so helpless and out of control. I was numb, scared, and confused.
The Magnesium makes you feel drunk basically, I hated this. Not only was I terrified, I was out of it too. It also gives you intense hot flashes. I was so grateful for D and Debbie, they stayed to comfort me when all the nurses left me alone.
In all this chaos I couldn't really wrap my head around the fact I was actually in labor. I had heard them say it but I was in denial. I wasn't ready, I hadn't taken my last birth class, would the baby be alive, my parents are in Europe, the nursery is not done, I don't want to deliver in a hospital!!! All these thoughts were running through my head.
When I look back now I didn't really process everything until about 3 days later. I am grateful for this because shortly after being admitted I was so calm and relaxed. I think my mind blocked a lot of what was happening out in order to get this job done and be strong.

Derek later said that I was pretty much meditating the whole time at the hospital. I couldn't feel the contractions, I was not in pain, and baby was doing well! I was examined again and this time the number I heard was 7cm. I realized before they told me that this baby will be coming sooner than later. I told the Dr I couldn't feel any contractions but they were showing up on the monitor. They were very surprised and told me I have a very high pain tolerance. The worst part about being there was the catheter they put in. In my 'magnesium induced' state I asked every person that walked in the room to take it out!! I begged, pleaded, and even offered to wear a diaper. Yeah, it was bad!! I hated that damn catheter.
There goal was to get me stable (meaning no change) and transfer me to Loyola, about 10 minutes away to deliver there where they have a level 3 NICU. If I had no change in 2 hours I could go. I think at this point I realized that this was big, Brayden is coming and may not make it. I wondered what a 28 week baby would even look like? Would he be alive? Breathing? Would I need a c-section? I asked and was assured I was pushing him out. I still couldn't grasp that I was having a baby, I was going to push him out, and no one could reassure me he would be OK. They told me he would be 2 lbs or under and that they weren't sure his chances but the Dr's would do all they could.
I was checked at my 2 hour point and low and behold...no change. The nurse left the room to call Loyola and get my ambulance ready to move! Almost as soon as she left the room I felt something funny. I turned to D and said, 'My water just broke, get the nurse'! In my head all I could think was SHIT!!!!
The nurse checked and it indeed had broken. She said that I was staying and Brayden would be born right here, I was not going anywhere. The Loyola team would need to come to me.
They told me that if I felt pressure or felt the urge to push to get the nurse immediately. This scared me. I think it finally hit me that this baby is coming SOON. Like really soon!! I started to feel contractions more but they were still pretty mild. I noticed them every 1 minute or so. I was scared, I knew that they were quicker and stronger and that meant any moment now. I hadn't had time to mentally prepare for delivery. I wasn't sure what to do. I was just dreading that 'pressure' feeling they mentioned. I hope and prayed that it would just never come, that he would somehow stay in!
About 30 minutes went by and they told me the Loyola team was on there way and to try and hold off until they get here. What?!? SHIT again is running through my head, how the hell am I suppose to hold off!!
It felt like 5 minutes and I had D get the nurse because I was indeed feeling pressure, it was faint but I wasn't taking any chances. Dr Gomez had arrived back at this time and said it was time to get ready. It was almost instant....the NICU team arrived and were setting up the baby area, the furniture was being moved out, the Dr's put on all the gear and masks, the room was chaotic and full of people (about 12). Everyone was introducing themselves and telling me there 'job' and it was all a blur. The only one I remember meeting was Dr Vega, the Loyola Neo Dr, I knew she was the important one, she was going to save our baby. She was the hope I needed in all this, once I met her I was reassured.
Around 6pm....
It was time, time to push. I was 9cm and they said I could start now and my pushing would open me up to 10cm. I told them I needed help. I didn't know what to do. I was coached to push down hard when I felt a contraction and hold it for 10 seconds. Only problem, I couldn't feel the contractions. The first one went by and the Dr's looked confused. 'Can you feel that? "No'. My reply seemed to surprise them and me too. I asked 'Is this normal' and got my own 'no' response. So new plan; they tell me when and I push. Every 30 seconds the monitor would show a contraction and I would push, hold, breath, and push again. I pushed for about 20 minutes and at the very end I remember being tired, out of breath, and in pain for the first time. His head was almost out and it hurt like hell!! I remember saying 'just get him out!' I just needed relief. Derek was so amazing, he coached me the whole time, telling me how great I was doing. The whole room seemed small now. I didn't notice anyone but D, my nurse, and my Dr. A few more pushes and they told me to open my eyes and look at my baby. I was scared, part of me didn't want to see this frail sick baby I thought was coming.
I opened my eyes and saw the most beautiful pink crying baby. He was tiny and skinny but he was mine. This miracle that had been living in me for 7 months was right in front of me. I had become a mom! I was happy and relieved and scared, and in an instant he was gone. Whisked off to the Neo team. There was so much commotion and I could see him for brief moments when the bodies surrounding him would break. Derek kissed me and I kept asking 'how is he?' 'is he OK?' My Dr was pushing on my stomach 'we're trying to get the placenta out' they told me but all I cared about was the commotion in the corner and my baby.
The few minutes he was in the room felt like seconds. Dr Vega came over and held him to my face and said 'kiss your son', I did! He was so small and perfect. With tears I told him I loved him. D and I told each other we love you and I said go be with him and just like that my husband and son were gone. It was just me now.
My nurse was there but I felt so alone. I had no brand new baby wrapped in my arms or the loving husband by my side. My parents were not down the hall waiting to come see there new grandson. I had just become a mom and my heart was broken.
When the nurse determined I was stable she left the room, the silence was deafening. I stared at my phone waiting for every text from D with an update on Brayden. The whole situation was surreal, like it never happened. 'Was it a dream?' I desperately hoped it was but reality kicked in. My dream had become a nightmare.
I was released 4 short hours later, unheard of for being discharged, but given the situation they let me go to be with my son. I was stable and OK to leave and after a very quick shower I left.
Around midnight
I was driven and escorted to Loyola by my SIL Stacy and her husband Matt. In a daze I was shown the NICU (lock down) door and let in. I was shown where to go and when I turned the corner I saw D sitting in front of a small open warmer. It was my son!
I don't remember this first night with him in the NICU. D and the nurses later told it to me in more detail. What I do remember is as soon as I sat down and looked at him I started crying. He was alive and I was scared. I had no idea what was in store for us next.
We sat with him for a few hours and then left, empty handed, only to return every day since, always leaving empty handed.
****
The emotions felt during the past few months have been intense. I have been up and down many times trying to process all this. It was necessary for me to be depressed and learn how to grieve in order to come out where I am now. When my son was sick I thought I would never come out of my sadness, the bottom is hard but we must fall down in order to fly back up. I did not get my ideal pregnancy, birth, or newborn. It has been hard to let go of these things and move on to accept what I have. My son may not be the 'normal' baby but he is perfect. The joy he brings me each day could never be replaced.
I have come to a place now where I am grateful for our situation and having been able to spend this time watching Brayden grow. I myself have also grown so much in the last 2 months. I can say I will not come out of this experience the same person, deep down I'm the same but I have developed a new outlook and appreciation for life and my family that I would have never gotten without going through this.
Our situation is not ideal and I hope no one I know has to go through it, but now that we have lived it, I wouldn't give it back. For with all the sickness and bad we have seen, we have also seen this little miracle fight and grow. Every smile and moment with him is worth it all. He continues to fight and we will be there every step of the way.
Someday the NICU will be a distant memory. It was(is) traumatic and extremely hard but somehow we survived. I guess as parents all you can do now is react and adapt. He is worth all of it.
*****
When you reflect back on the day your child was born it should stir happy and excited emotions of warmly welcome your little one. For me, the day I met my son was not filled with these typical emotions, amidst the excitement of meeting him there was a lot of fear underneath it all. The day was terrifying but we can't go back and change it, it is forever our story.
The week of August 23rd....
The week was starting out normal per usual. I was excited that my third trimester was in the works and we were in the home stretch to meet our little boy. I was looking forward to Fall and welcoming the much needed cooler weather. This was an exciting week for me, I had a three day work week and then we were off to Michigan for our babymoon trip.
I was one of those women that experienced Braxton Hicks contractions from about 23 weeks on. A completely normal part of pregnancy. This week I noticed that they were slightly stronger than normal. They were not coming at any regular intervals so I brushed them off. I noticed I was getting more back pain and I would ask Derek to rub my lower back each night before bed. I thought that the third trimester had really kicked in and I was starting my 'uncomfortable' stage.
I had my 7 month check up with my midwife that Tuesday and everything checked out perfect. I had passed my glucose test, my iron levels were perfect, and my weight gain was right on track. I was the gold star mom to be!! I asked her about my stronger BH contractions and she assured me that as long as they weren't regular or I was having more than 4 an hour that it was nothing to be alarmed about. The back pain is common in late pregnancy and neither of us were too concerned. I left the appointment with a big smile and happy about my healthy progress!
Thursday had finally come and we were all set to drive to Michigan for our special trip. I wasn't looking forward to 4 hours in the car but I couldn't wait to 'get away' for the weekend. The weather was shaping up to be a perfect weekend. We arrived in MI around 4 and quickly settled into our room and headed to the town to shop before dinner. We found the cutest little shops; baby stores, a dog boutique, and a gelato store. After an early dinner we both got a large gelato and then headed back to the hotel to watch the sunset on the patio. It was so beautiful over the lake.
I headed to bed early (per usual). I remember asking D to rub my back, the bed was pretty hard and I knew I would be uncomfortable all night. I woke up a few times to pee and because the bed was so hard, making the back pain worse. I was dreading sleeping on this bed for another 2 nights but I thought that the lake view was worth the crappy bed!
Friday, August 27th.....Braydens Birth Day!
We both woke up to the sunrise and the rays pouring into the room. Our natural alarm clock! I sat up in bed to wake up more then I rolled over to baby pose, for the yoga buffs, on the bed to relieve my back pain some. When I finally got out of bed my usual routine began...bathroom was always first. I remember looking down and there was a small amount of blood. My mind was immediately filled with panic. I knew this wasn't a good sign. I showed D, maybe hoping that I had imagined it and asked him what to do. I already knew that calling our midwife was game plan 1 but some part of me just needed some reassurance and help!
Derek called Debbie to explain and she instructed us to wait while she called her practicing physician. (Midwives in IL must have a physician they partner with in case there patients should need to go to a hospital, the physician would be there Dr). I had scheduled my mandatory meet up with him for the following month just to get the all clear for paper records. Little did I know I would be meeting him in a few hours.
While I was waiting for the call back I told D to pack and that I was sure we were going to head home. The 30 minute wait seemed like 10 hours. The phone finally rang and she presented options. I didn't want options, I needed to be told what to do!!! We could either go to a hospital in Michigan to get checked out or risk a drive home, if something were wrong the drive could present problems like not knowing where a hospital was. I put her on hold, checked the bleeding which had stopped, and told her I was heading back. Something in my head just told me to leave and so we did. Within 5 minutes we were off.
My midwife made an appointment for me at her physicians office, 3 hours away, and said she would meet us there to get checked out!
I was so scared the whole ride. My mind was going over every scenario of what this could mean. D and I were pretty silent the whole ride. I asked him to stop once so I could check the bleeding and it hadn't come back. This gave me a small amount of relief. I was having 1-2 BH an hour, I timed them out of fear, and nothing was regular or stronger so this brought me some relief. I tried to remain as calm and relaxed as possible while in the car. We didn't tell anyone we were headed back, we didn't want to scare anyone if it was nothing so we decided to wait on the phone calls. My parents has just arrived in Europe for there anniversary trip and I was definitely feeling scared having my mom was so far away.
We finally arrived at the Dr's office and they asked me to have a seat and wait for the Dr. I was furious!! They seriously want me to wait?? I asked to use the bathroom before my exam and my fear again returned, more bleeding. I was silently freaking out inside. When I returned to the waiting room Debbie had arrived and D could see the terror on my face. I explained to Debbie all the events in more detail and asked what this could be?? As soon as I asked my question I wanted to take it back, I didn't really want to hear what this meant, secretly I knew it was bad and I didn't want anyone to say it out loud.
We all got called in and I met Dr Gomez who examined me along with Debbie. He decided on a vaginal exam first to see what was going on. It was only about 30 seconds and I knew by the look on his face it wasn't good. He said quietly and slightly panicked to Debbie 'I can feel the membrane sack, she is 100%, and 5'. I knew what this meant, I had been a good student in my birth classes. Membrane sack: amniotic sack, 100%: cervix was 100% open, 5: I was 5cm dilated! He looked at me and said what I already knew, 'you are in pre-term labor'. Debbie walked over to grab my hand and I went numb. I looked at D for reassurance and he looked just as scared. I was asked to carefully lay down for an u/s. I only saw B on the screen for a second. The Dr confirmed 'he was in position' and turned the screen off. Debbie and the Dr left to 'talk' and I immediately started crying. I was so confused. How the hell was I 5cm dilated? How the hell was I in labor and didn't know it?
After quickly returning the Dr said I need to be admitted to the hospital immediately and I would need to wait for a wheel chair to be escorted over. Luckily the OB office was connected to Gottlieb Hospital so I didn't need to go far. They placed me in the waiting room, again, and said the escort would be there soon. Seriously more waiting....I'm in labor here!!!! I was mad and confused. I said to D, 'it's time to call our families'.
I waited for an eternity it seemed before my wheel chair and Labor and Delivery nurse arrived. She did her best to calm me and tell me what was going to happen once I got to my room, I don't remember a word she said except that 'your husband will meet you in the room after he checks you in'. What? No, your not leaving me alone! Apparently I had no choice in the matter because next thing I knew D was gone, I was asked to put a gown on, 3 nurses were giving me IV's, I got a huge needle in the thigh, 'steroids for babies lung' they said, and a fetal monitor on my belly. And then just as quick everyone was gone! The room was still.
It was noon.
Debbie arrived about 3 minutes later to sit with me and shortly after D came back in. Debbie explained to me that I was being given Magnesium to try and postpone the labor and the steroid was to help Braydens lungs for the outside world. My head was spinning, I wasn't really sure what was going on. I felt so helpless and out of control. I was numb, scared, and confused.
The Magnesium makes you feel drunk basically, I hated this. Not only was I terrified, I was out of it too. It also gives you intense hot flashes. I was so grateful for D and Debbie, they stayed to comfort me when all the nurses left me alone.
In all this chaos I couldn't really wrap my head around the fact I was actually in labor. I had heard them say it but I was in denial. I wasn't ready, I hadn't taken my last birth class, would the baby be alive, my parents are in Europe, the nursery is not done, I don't want to deliver in a hospital!!! All these thoughts were running through my head.
When I look back now I didn't really process everything until about 3 days later. I am grateful for this because shortly after being admitted I was so calm and relaxed. I think my mind blocked a lot of what was happening out in order to get this job done and be strong.
Derek later said that I was pretty much meditating the whole time at the hospital. I couldn't feel the contractions, I was not in pain, and baby was doing well! I was examined again and this time the number I heard was 7cm. I realized before they told me that this baby will be coming sooner than later. I told the Dr I couldn't feel any contractions but they were showing up on the monitor. They were very surprised and told me I have a very high pain tolerance. The worst part about being there was the catheter they put in. In my 'magnesium induced' state I asked every person that walked in the room to take it out!! I begged, pleaded, and even offered to wear a diaper. Yeah, it was bad!! I hated that damn catheter.
There goal was to get me stable (meaning no change) and transfer me to Loyola, about 10 minutes away to deliver there where they have a level 3 NICU. If I had no change in 2 hours I could go. I think at this point I realized that this was big, Brayden is coming and may not make it. I wondered what a 28 week baby would even look like? Would he be alive? Breathing? Would I need a c-section? I asked and was assured I was pushing him out. I still couldn't grasp that I was having a baby, I was going to push him out, and no one could reassure me he would be OK. They told me he would be 2 lbs or under and that they weren't sure his chances but the Dr's would do all they could.
I was checked at my 2 hour point and low and behold...no change. The nurse left the room to call Loyola and get my ambulance ready to move! Almost as soon as she left the room I felt something funny. I turned to D and said, 'My water just broke, get the nurse'! In my head all I could think was SHIT!!!!
The nurse checked and it indeed had broken. She said that I was staying and Brayden would be born right here, I was not going anywhere. The Loyola team would need to come to me.
They told me that if I felt pressure or felt the urge to push to get the nurse immediately. This scared me. I think it finally hit me that this baby is coming SOON. Like really soon!! I started to feel contractions more but they were still pretty mild. I noticed them every 1 minute or so. I was scared, I knew that they were quicker and stronger and that meant any moment now. I hadn't had time to mentally prepare for delivery. I wasn't sure what to do. I was just dreading that 'pressure' feeling they mentioned. I hope and prayed that it would just never come, that he would somehow stay in!
About 30 minutes went by and they told me the Loyola team was on there way and to try and hold off until they get here. What?!? SHIT again is running through my head, how the hell am I suppose to hold off!!
It felt like 5 minutes and I had D get the nurse because I was indeed feeling pressure, it was faint but I wasn't taking any chances. Dr Gomez had arrived back at this time and said it was time to get ready. It was almost instant....the NICU team arrived and were setting up the baby area, the furniture was being moved out, the Dr's put on all the gear and masks, the room was chaotic and full of people (about 12). Everyone was introducing themselves and telling me there 'job' and it was all a blur. The only one I remember meeting was Dr Vega, the Loyola Neo Dr, I knew she was the important one, she was going to save our baby. She was the hope I needed in all this, once I met her I was reassured.
Around 6pm....
It was time, time to push. I was 9cm and they said I could start now and my pushing would open me up to 10cm. I told them I needed help. I didn't know what to do. I was coached to push down hard when I felt a contraction and hold it for 10 seconds. Only problem, I couldn't feel the contractions. The first one went by and the Dr's looked confused. 'Can you feel that? "No'. My reply seemed to surprise them and me too. I asked 'Is this normal' and got my own 'no' response. So new plan; they tell me when and I push. Every 30 seconds the monitor would show a contraction and I would push, hold, breath, and push again. I pushed for about 20 minutes and at the very end I remember being tired, out of breath, and in pain for the first time. His head was almost out and it hurt like hell!! I remember saying 'just get him out!' I just needed relief. Derek was so amazing, he coached me the whole time, telling me how great I was doing. The whole room seemed small now. I didn't notice anyone but D, my nurse, and my Dr. A few more pushes and they told me to open my eyes and look at my baby. I was scared, part of me didn't want to see this frail sick baby I thought was coming.
I opened my eyes and saw the most beautiful pink crying baby. He was tiny and skinny but he was mine. This miracle that had been living in me for 7 months was right in front of me. I had become a mom! I was happy and relieved and scared, and in an instant he was gone. Whisked off to the Neo team. There was so much commotion and I could see him for brief moments when the bodies surrounding him would break. Derek kissed me and I kept asking 'how is he?' 'is he OK?' My Dr was pushing on my stomach 'we're trying to get the placenta out' they told me but all I cared about was the commotion in the corner and my baby.
The few minutes he was in the room felt like seconds. Dr Vega came over and held him to my face and said 'kiss your son', I did! He was so small and perfect. With tears I told him I loved him. D and I told each other we love you and I said go be with him and just like that my husband and son were gone. It was just me now.
My nurse was there but I felt so alone. I had no brand new baby wrapped in my arms or the loving husband by my side. My parents were not down the hall waiting to come see there new grandson. I had just become a mom and my heart was broken.
When the nurse determined I was stable she left the room, the silence was deafening. I stared at my phone waiting for every text from D with an update on Brayden. The whole situation was surreal, like it never happened. 'Was it a dream?' I desperately hoped it was but reality kicked in. My dream had become a nightmare.
I was released 4 short hours later, unheard of for being discharged, but given the situation they let me go to be with my son. I was stable and OK to leave and after a very quick shower I left.
Around midnight
I was driven and escorted to Loyola by my SIL Stacy and her husband Matt. In a daze I was shown the NICU (lock down) door and let in. I was shown where to go and when I turned the corner I saw D sitting in front of a small open warmer. It was my son!
I don't remember this first night with him in the NICU. D and the nurses later told it to me in more detail. What I do remember is as soon as I sat down and looked at him I started crying. He was alive and I was scared. I had no idea what was in store for us next.
We sat with him for a few hours and then left, empty handed, only to return every day since, always leaving empty handed.
****
The emotions felt during the past few months have been intense. I have been up and down many times trying to process all this. It was necessary for me to be depressed and learn how to grieve in order to come out where I am now. When my son was sick I thought I would never come out of my sadness, the bottom is hard but we must fall down in order to fly back up. I did not get my ideal pregnancy, birth, or newborn. It has been hard to let go of these things and move on to accept what I have. My son may not be the 'normal' baby but he is perfect. The joy he brings me each day could never be replaced.
I have come to a place now where I am grateful for our situation and having been able to spend this time watching Brayden grow. I myself have also grown so much in the last 2 months. I can say I will not come out of this experience the same person, deep down I'm the same but I have developed a new outlook and appreciation for life and my family that I would have never gotten without going through this.
Our situation is not ideal and I hope no one I know has to go through it, but now that we have lived it, I wouldn't give it back. For with all the sickness and bad we have seen, we have also seen this little miracle fight and grow. Every smile and moment with him is worth it all. He continues to fight and we will be there every step of the way.
Someday the NICU will be a distant memory. It was(is) traumatic and extremely hard but somehow we survived. I guess as parents all you can do now is react and adapt. He is worth all of it.
Never let go of hope. One day you will see that it all has finally come together. What you have always wished for has finally come to be. You will look back and laugh at what has passed and you will ask yourself "How did I get through all of that?"
Thursday, November 4
Prematurity Awareness Month

This month is prematurity awareness month. This is a cause so near to my heart since having my preemie. Awareness day is Nov 17 (the day before my original due date). I have signed up on Bloggers Unite to blog about it that day. Last year they reached out to over 13,000 people and hopefully this year there will be even more.
If you have a preemie or know someone who has experienced a premature birth please check out March of Dimes to learn more about awareness day and preemies.
| Brayden at 1 day old (12 weeks premature) |
Wednesday, November 3
Cuteness!
I know every mom says this but....I have the cutest son!! He has such a personality!! Could not be more in love!
B is currently:
6lb 2oz
18.25"
He is having some trouble regulating his temperature but that is to be expected because of the brain bleed he had at 1 week old. He may always run on the colder side or it may come and go. He is a little extra bundled and staying warm!
It's been a tough week for me, more on this later, but we are hanging in there and B is doing very well. We are so grateful for all the good days, we even have been talking to the doctors about discharge!! I'll go into more later, we don't want to jinx anything!
For now, more cuteness. I love his little faces!
Monday, November 1
Halloween!
Yesterday we headed to my Sister in laws husbands family's house. That's a mouthful! They live in a great neighborhood with awesome trick or treating. We wanted to get away for a few hours and see our niece, Zoe, all dolled up in her cat outfit. She was so cute!
After wards we headed to the hospital to have Halloween with our little man....the pumpkin! He looked so cute in his costume. It was a little big but we made it work!
Then I got some K care time. He just slept for 2 hours!! My fave thing in the world!
This Halloween there were no parties, no dressing up, and it was the best one yet. Great day!!
| Mommy and daughter |
After wards we headed to the hospital to have Halloween with our little man....the pumpkin! He looked so cute in his costume. It was a little big but we made it work!
Then I got some K care time. He just slept for 2 hours!! My fave thing in the world!
This Halloween there were no parties, no dressing up, and it was the best one yet. Great day!!
Subscribe to:
Posts (Atom)



