This is a scary word but we are used to scary words around here.
Today B had an appointment with an Orthopedic Dr to check his spine/bones. Children with low tone (weak muscles) and brain damage are at greater risk for bone problems specifically scoliosis. We knew this check up was coming, it's been on our radar. We got an x-ray and sat with the Dr to review his case.
B indeed has a small curve in his spine, it's called Nueromuscular Scoliosis. His curve is very small, not causing him any pain, and not restricting his activity any.
Some kids can also have issues with there hips because of the lack of activity. B's hips look great she said!! They are developing as they should and are strong.
Kids spines have the most rapid growth between birth-2 and the teenage years. B will be followed every 3 months with an x-ray until he is 2 and then the follow ups will be less. There is always a chance it will get worse but also that it will never change. We just need to watch it and continue with his therapies to strengthen his body. Worse case would be a need for surgery down the road, fingers crossed we don't ever cross that bridge.
As a mom to a special needs child I have developed a thick skin and a huge medical knowledge but I am sad that this is just one more thing B will have to overcome. And us as parents will have to manage. I am happy that it really was good news given the circumstances and I will do what I can to make sure it doesn't get worse.
My little man is such a fighter and inspiration. He has a million drs and a handful of medical issues but his spirit is so happy all the time.
He was so tired today he couldn't stay awake for the exam, LOL, too cute.