Tuesday, February 7

Scoliosis

This is a scary word but we are used to scary words around here.

Today B had an appointment with an Orthopedic Dr to check his spine/bones. Children with low tone (weak muscles) and brain damage are at greater risk for bone problems specifically scoliosis. We knew this check up was coming, it's been on our radar. We got an x-ray and sat with the Dr to review his case.

B indeed has a small curve in his spine, it's called Nueromuscular Scoliosis. His curve is very small, not causing him any pain, and not restricting his activity any.

Some kids can also have issues with there hips because of the lack of activity. B's hips look great she said!! They are developing as they should and are strong.

Kids spines have the most rapid growth between birth-2 and the teenage years. B will be followed every 3 months with an x-ray until he is 2 and then the follow ups will be less. There is always a chance it will get worse but also that it will never change. We just need to watch it and continue with his therapies to strengthen his body. Worse case would be a need for surgery down the road, fingers crossed we don't ever cross that bridge.

As a mom to a special needs child I have developed a thick skin and a huge medical knowledge but I am sad that this is just one more thing B will have to overcome. And us as parents will have to manage. I am happy that it really was good news given the circumstances and I will do what I can to make sure it doesn't get worse.

My little man is such a fighter and inspiration. He has a million drs and a handful of medical issues but his spirit is so happy all the time.

He was so tired today he couldn't stay awake for the exam, LOL, too cute.

12 comments:

Katie said...

I grew up with a severe case of scoliosis, having corrective surgery a few years ago for it. I'm keeping my fingers crossed that B.'s spine stays strong and pretty straight.

You're an amazing mama. :)

Ashley said...

Sounds like they are staying on top of everything!! His eyes are amazing (in the side profile pic)! He does what I do after a tonne of appts!!

Kristen at First Name Smith said...

What a sweet baby boy! Prayers will always continue for you.

molly said...

What a cutie! I'm sorry about this new news and that it is just one more thing to worry about. But I love that he is such a fighter and it sure sounds like his parents are too!

Dianna said...

I am sorry to hear that. Hopefully it does not get worse and is something you don't have to worry about down the road. That pictures is just too sweet!

amy said...

He's getting so big! Sweet boy, hope his therapy gets him where he needs to be. miss you guys!

rosedel said...

I can't believe how long his legs are! Growing like a weed! I have to admit that I do miss his curls even though he is a big boy.

MJ @ Teaching in Heels said...

He's getting so big!! Sweet picture of him all sleepy... Hope everything will eventually turn out for the best for him and things do not get any worse...

Tiff said...

Hey sweet friend! Thinking of y'all. Please let me know if y'all need anything. I've been sending prayers all day!

{annie_loo} said...

God bless him. He does have a long list of things, but you are wonderful parents and there is NOTHING that you cannot help him overcome! These are simply obstacles. Obstacles build character. Praying for continued health and growth for sweet B!

Samantha said...

I learned in elementary school that I have scoliosis. I am praying for your little boy may God give him strength!!

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