*We have been slowly weening Brayden off his Phenobarbital (seizure med) for the past 3 months. Last night was his last dose and we had zero problems with the ween. He had been on it since 7 days old and we were worried the ween would bring on seizures, which is common. (fingers crossed) It went perfectly and now he is just on one med for seizures, which hopefully someday he will be on none but we are happy for now.
*Yesterday I med with B's special needs Dr and an equipment vender to talk about stroller/wheelchair options for B since he has outgrown his stroller and with his low head control he needs a special chair. We found a great option that insurance covers!! It looks like a stroller. Folds down like a stroller. It's light weight. It will grow with him. It is approved for van/bus travel when he goes to school at 3.
It's called a Kid Kart Express. It will be here in a few weeks.
*B is rolling like crazy, especially with his new play gym that D made. He loves it!
*B got fitted for night time leg braces (AFO's) and so far hates them. We are trying to get him to nap in them to build up to wearing them all night.
*B is starting to make small little laugh noises when we tickle him. Maybe we can get a laugh soon!
*We have been thinking about getting B a G tube, permanent feeding tube that would be surgically inserted into his stomach. He has not been eating well and his weight has been up and down. We are meeting with his GI Dr again in July to discuss more. The other night it was a struggle to get B to take his meds, which with a tube he could easily get.
*Tooth number two is right under the gums and any day now!
|Sleeping in this morning|
|Being silly with mom!|
|Dad likes the play mat too!|