After many months of consideration, talking to drs, talking to therapist, and deciding what we feel is right for B we have decided to move forward with the G tube.
B is scheduled for surgery Wed June 27 (11am). We will go in for the quick surgery and spend at least 24 hours in the hospital. We will be at Children's in Milwaukee where he stayed before. It's a fairly simple procedure but surgery is surgery. We hate that we are opting for B to have this procedure but it's where our journey is taking us. B does not eat well and some days it's a struggle for him to even take his meds. His weight has been up and down and now has plateaued so medically it is time as well.
As a mom I feel sad that this is happening, I want to be able to feed my son. I also feel happy that we can do this for him because eating has become stressful for him.
After surgery he will have a long tube coming out of his site. After it heals (6 weeks) it will be replaced with a small button that will allow access to feed him.
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| stock google photo |
I'm sure like with all B's special needs once I master this it will become second nature to me but the transition time is hard and I hate staying in the hospital. This time it's our choice and that feels good. We can make the right choice for our little man to help him thrive and live a better life.
Updates to come.
9 comments:
I'm sorry you all have to go through another surgery. That is one tough boy! And you will master it. As a nurse, we know that a lot of the times the parents can do these things even better than us. You all are awesome!
Pretty soon the gtube will be just another everyday occurance and you won't know what you did without it! I know another surgery totally sucks, but it will definitely de-stress life a little bit for you and for Brayden!!
Oh I am so happy that he is getting this. Hopefully this will really help out. And you'll be a pro at no time. Sending prayers for all of you!
Our daughter has had her g-tube since last October. It really is such an emotional decision to make. I was totally intimidated by the tube and learning to use it, but you are right - you will definitely become an expert and master it all quickly :) Our daughter has a Mic-key button, so if you have any questions, I'd love to help :) I have pics on our blog about her tube and how it works, etc. Sending well wishes for a quick surgery and recovery! (also, you should check out "Belly Buttons" and "Tubie Whoobies" on facebook for super cute g-tube pads)
I'm sorry it's a decision you have to make, but I'm sure it's the right decision for B and your family. I'll be keeping you in my thoughts, lady! XO Hugs from ohio!
you have to do what is best for your child.
My sister foes up to the Children's in Milwaukee perhaps twice a month. She has a young daughter who will be one on Thursday that has hypoplastic left heart syndrome. My niece has a tube like that sort of that my sister is feeding her through as well. It helps that my sister is a nurse as is my mother.
I'm sorry you guys have to go through this too Heather, but like you said...it's finally a choice you are getting to make which is going to make the transition so much smoother. Thinking of you guys :-)
great idea! you won't regret doing it! i promise : )
You are going to do great with this. Plus, with this helping with medications, it will take some of the stress off of you, worrying whether he got it or not.
Sending many prayers your way! :)
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