After many months of consideration, talking to drs, talking to therapist, and deciding what we feel is right for B we have decided to move forward with the G tube.
B is scheduled for surgery Wed June 27 (11am). We will go in for the quick surgery and spend at least 24 hours in the hospital. We will be at Children's in Milwaukee where he stayed before. It's a fairly simple procedure but surgery is surgery. We hate that we are opting for B to have this procedure but it's where our journey is taking us. B does not eat well and some days it's a struggle for him to even take his meds. His weight has been up and down and now has plateaued so medically it is time as well.
As a mom I feel sad that this is happening, I want to be able to feed my son. I also feel happy that we can do this for him because eating has become stressful for him.
After surgery he will have a long tube coming out of his site. After it heals (6 weeks) it will be replaced with a small button that will allow access to feed him.
|stock google photo|
I'm sure like with all B's special needs once I master this it will become second nature to me but the transition time is hard and I hate staying in the hospital. This time it's our choice and that feels good. We can make the right choice for our little man to help him thrive and live a better life.
Updates to come.