Wednesday, November 28

Special Stroller

We have been trying to get Brayden a wheelchair/Stroller for the last 5 months. We finally found one that he actually likes to sit in and that works for our family. Well I found out yesterday is was denied by my insurance because they consider it a luxury item. Now I about lost my shit when I heard this. Apparently if you have cerebral palsy and can't walk, having a stroller/chair that you actually fit in and can spend hours a day in is a luxury. You suck Blue Cross.

So after my panic, tantrum, tears, cursing, I realize we have to figure something out. We will have to pay for the chair ourselves.

The power of the blog world is amazing...my blog friend Kristen posted about doing an auction for B within hours of hearing about it. If you would like to participate and help B get his chair he really needs please visit her blog.

Part of my panic was because B needs a chair now. He is too big for his current stroller and we have trouble taking him places. I am angry our approval process took so long and delayed him getting the much needed chair even more.

I plan to reach out to helping sites that sometimes donate money to kids in need.

If you would like to help please visit Kristen's page, make a donation to our van link, or shoot me an email. I can't say thank you enough....

Here is the chair we are trying to get. Special Tomato. It's an amazing positioning stroller that fits special needs kids up to 90lbs. It's got high back support to help with B's head. It has inserts you can buy to help his scoliosis and it has a 5 point harness to keep him secure. It's light weight so we are able to bring it with us. It is comfortable so B can use it hours a day so he is upright. This will meet our needs until we get a wheelchair van and even after since it allows for bigger special needs kiddos.


11 comments:

Nicole said...

So sorry to hear this. Part of me can't help but be frustrated with companies for the way they price this equipment. Can you can call the company & explain that your insurance is denying it and see if (especially because it's the holidays) they'd knock that price down for you? I know that you were living in Chicago but moved out to the suburbs. If you're interested, I work at a small non-profit in DuPage Co that helps parents find resources. I've never had a request such as this but I could give you some phone numbers of places to ask if they have any funds available. It's a long shot, but the worst they could say is no. We have a website, www.positiveparentingdupage.org, that lists about 1800 different resources throughout the county & surrounding. If you call the 877 number, I'm the one who answers.

Shelli said...

Heather,
I came across your blog yesterday via Kristen's blog and I was so touched by Brayden's story. He is so precious and I want him to have that stroller so bad! I included your blog in my blog post today to help spread the word and I would like to make a donation. Please let me know the best way I can do that!

Ashley said...

I can't believe that your insurance considered this a luxury! That's ridiculous! hope you're able to find some help elsewhere!

Caroline said...

Insurance companies disgust me!! I hope B gets his stroller soon!

Anonymous said...

Hello.....I am going through the exact same thing with my insurance company! It hurts my heart! I love this stroller as well. It is the one I was trying to get approved! I wish you luck in your journey!

Jayde said...

What a luxury! Yeah right! Praying for you to get the stroller money ASAP.

Darby McCormick said...

I was curious about how much the special tomato was going to cost, and I found a website that has the chair on for almost half price. I'm not sure what it was going to cost you but thought I should send you the website. I have nothing to do with this company, just thought that it might be helpful :). The website is www.adaptivemall.com

Nantucket Daffodil said...

This is just not right. A luxury item? Really???? Who gets to decide that. All I can say is :karma". I know the word will get around! Fingers crossed.

baby care said...

There are lots of latest features in this strollers like stylish reversible large seat, and short in size.really it is awesome and good for baby for more info cheap lightweight stroller. and also affordable price.

Katie @ Loves of Life said...

Heather,
Have you posted this on momastery's holiday hands page?!

They get amazing response to needs!

check it out here:

http://monkeeseemonkeedo.org/holiday-hands/

You post your need, and people will donate and help pitch in...

hope it helps?

xo
katie

Katie @ Loves of Life said...

ugh. ignore me! they stopped accepting listings!